The Cystic Fibrosis Foundation is the world's leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles. For well over a decade, CFF has employed a venture philanthropy model that provides upfront funding to pharmaceutical companies to help reduce the financial risk associated with the development of drugs to treat CF. We reach beyond boundaries in pursuit of our vision. 4/18/2022 We're committed to funding research and supporting researchers at all stages of their career. Number of Founders 59. Find out about our funding process and governance. Cystic Fibrosis Foundation Launches Inaugural Golden Ticket Competition to Find the Next Genetic Therapies for CF. Reasonable Accommodations: The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at HROps@cff.org. The Cystic Fibrosis Foundation is the world's leader in the search for a cure. We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support. They note, for example, that Kalydeco costs $300,000 a year and argue that CFF should be doing more to bring down its cost. In 2014, the Foundation sold royalty rights for CF treatments developed by Vertex for $3.3 billion to Royalty Pharma, bringing resources to the fight against CF never thought possible. Their most recent diversity investment was on Jan 10, 2023, when ReCode Therapeutics raised $10M. With a growing sense of impatience, Robert J. Beall, PhD, then president and CEO of the Foundation, landed on an idea called venture philanthropy to break through the pharmaceutical industrys reluctance to get involved in cystic fibrosis research. Investment due diligence, selection, and monitoring of investment partners, including fund managers, co-investments, and direct investments. Fundamentals of asset allocation and portfolio management. Cystic Fibrosis Foundation has earned a 94% for the Accountability & Finance beacon. Nearly every CF medicine available today was made possible because of Foundation support. ReCode's CFTR mRNA therapy aims to compensate for mutated CFTR . The companys focus is to develop investigational treatments which add a healthy copy of genes for other diseases, and the CF Foundations investment will enable them to apply their novel approach to CF. Cystic Fibrosis Foundation has made 31 investments. CFTR modulator therapies have changed the lives of many people with CF, but not everyone can benefit. Experience with Microsoft Word, Excel, and PowerPoint. (800-344-4823) Cystic Fibrosis Foundation (national office) 4550 Montgomery Ave. Suite 1100 N Bethesda, MD 20814 More Ways to Get in Touch Footer Life with CF Intro to CF Managing CF Research & Clinical Trials CF Community Get Involved Local Chapter Community Blog For Professionals Researchers Medical Professionals Press About Us Fri, 9 am - 3 pm ET, High-Frequency Chest Wall Oscillation (the Vest). The Cystic Fibrosis Foundation has committed $20 million to support the development of innovative therapeutics and early-stage companies focusing on cystic fibrosis (CF). OurVenture and Innovation Awards(VIAs) provide financial support to innovative research projects and allow the Trust to bring in funding from external agencies. Capacity to fully understand a problem and offer potential solutions. POSITION SUMMARY Help support Cystic Fibrosis Foundation today! Apr 2014 - Apr 20173 years 1 month. . We support one another. A person will be born with CF only if 2 CF genes are inheritedone . (1-800-344-4823) Sign in to create your job alert for Investment Associate jobs in Bethesda, MD. The approach has been widely emulated by many other rare disease nonprofits, and a National Institutes of Health initiative has adopted CF Foundation strategies to advance drug development for rare and neglected diseases. Get a second opinion. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward. The Cystic Fibrosis Foundation is the world's leader in the search for a cure for Cystic Fibrosis, a life-threatening genetic disease that affects more than 30,000 people in the united states, and 70,000 worldwide.the Foundation accomplishes its mission by funding life-saving research to discover and develop effective therapies for people with cf. Since many of our patients were diagnosed with cystic fibrosis as children or teenagers, we . BETHESDA, Md. Parent Organization. Help support Cystic Fibrosis Foundation today! Referrals increase your chances of interviewing at Cystic Fibrosis Foundation by 2x. It's an evolving map with many paths and unique challenges. Cystic Fibrosis Foundation (national office) Our goal is a cure for 100% of people living with CF and we refuse to leave anyone behind. Cystic Fibrosis Foundation Receives $3.3 Billion Royalty Pay Out November 24, 2014 The Cystic Fibrosis Foundation has announced that it has sold its royalty rights to CF treatments developed by Vertex Pharmaceuticals to drug investment firm Royalty Pharma for $3.3 billion. We strive to recruit and maintain a diverse workforce. Copyright 2023 CB Information Services, Inc. All rights reserved. Visit the Career Advice Hub to see tips on interviewing and resume writing. Get the full list, Youre viewing 5 of 13 board members. Cystic Fibrosis Foundation Receives $3.3 Billion Royalty. CF Foundation Announces Unprecedented Acceleration and Expansion of CF Research, Care and Patient Programs, Deal by Cystic Fibrosis Foundation Raises Cash and Some Concern, Nonprofits Request Royalties From Drug Makers, Iacocca Family Foundation, Kineta Announce Partnership to Advance Type 1 Diabetes Drug Development, Massachusetts Drug Makers Turning to Foundations, Charities for Funding, MacKenzie Scott launches giving website, details charitable process, Mormon Church obscured control of $32 billion portfolio, SEC finds, Community-based efforts to reduce gun violence launched in four cities, Genentech, Genentech Foundation announce grants totaling $17 million, SoCalGas pledges $10 million to help those impacted by high gas prices, People in the News (02/26/2023): appointments, promotions, obituaries. Ability to prepare well-written, well-organized material, and present recommendations in a clear and concise manner. Our funding process and governance Applications for Cystic Fibrosis Trust research grants undergo a rigorous external peer review system before being considered by our Research Grant Review Committee (RGRC), which recommends applications for funding. Engages with the Investments/Business Development Team to facilitate meetings with Program Officers and biotech/pharma companies for initial . Ability to synthesize information from various sources and critically evaluate alternative approaches. Its machinery is being delivered using a lipid nanoparticle, which could allow potential re-dosing of the therapy with low risk of dangerous immune responses. Cystic Fibrosis Foundation Makes Equity Investment in Armata Pharmaceuticals Funds to be used to further advance development of lead candidate AP-PA02, which is being evaluated in a Phase 1b/2a. The Cystic Fibrosis Foundation, headquartered in Bethesda, MD., is a donor-supported, nonprofit organization committed to finding therapies and ultimately a cure for CF, and to improving the lives of those with the disease. Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families. By clicking Agree & Join, you agree to the LinkedIn, You can save your resume and apply to jobs in minutes on LinkedIn. "These new resources will allow us to supercharge our efforts to help all people with CF live long, healthy, and fulfilling lives today and work to find a cure. Introduction to multiple investment asset classes. Recently, the Cystic Fibrosis Foundation purchased this device for every patient with cystic fibrosis in the United States at least 20,000 people. Genetic therapies are the key to curing CF and, while it is still very early days in this scientific quest, were investing in many different approaches that offer promise, said Martin Mense, PhD, CF Foundation senior vice president of drug discovery and director of the CF Foundation Therapeutics Lab. In 2000, the Foundation made its first large investment: $40 million with Aurora Biosciences (now Vertex Pharmaceuticals) to discover compounds that might correct the core genetic defect in people with CF. Our bold investments in innovative research sparked the development of . People with CF are living longer, healthier lives than ever before. Sign up for our newsletter to get all of the latest news from The Foundation right in your inbox. Click the link in the email we sent to to verify your email address and activate your job alert. According to the Cystic Fibrosis Foundation, more than 30,000 people in the United States and more than 70,000 people worldwide are living with cystic fibrosis, and approximately 1,000 new cases of cystic fibrosis are diagnosed in the United States each year. We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Youre viewing 5 of 22 team members. blocks airways and leads to lung damage; traps germs and makes infections more likely; and. our sites and services. The organization's president and CEO, Robert J. Beall, told the Times that he had expressed his concern about the cost of the drug to Vertex but had no power to set the drug's price, adding that CFF's mission has always been focused on delivering treatments to CF patients, and that an income stream from the sale of royalty rights would only help. Cystic Fibrosis Foundation is searching for a cure for people with cystic fibrosis, a genetic disease that progressively limits the ability to breathe, causing debilitating lung infections, and ultimately, premature death. The Intern assists in implementing operational best practices to support the total investment program, executing the investment strategy, and researching new investment opportunities. The CF Foundation is a donor-supported nonprofit organization. For the latter clinical studies, reference to the outcomes of the James Lind Alliance refreshed CF research priorities is required. Are you sure you wouldnt like a free professional resume evaluation? You can update your choices at any time in your settings. ReCode Therapeutics has announced that it will secure a strategic investment from the Cystic Fibrosis Foundation (CF Foundation) to develop its inhaled mRNA-based therapeutic for cystic fibrosis (CF). C) Salary.com using cookies (as described here) to refine and tailor the website visitor experience. SalioGen hopes that by inserting a large piece of the healthy CFTR DNA and enabling the expression of functional CFTR protein in the lungs of people with CF, there will be a reduction in the amount of mucus buildup in the lungs. This is a profile preview from the PitchBook Platform. Highly skilled surgeons perform lung transplant surgery. Working toward a four-year college degree (Rising seniors strongly preferred), Ability to work collaboratively with team members to accomplish objectives. Ability to prepare well-written, organized material and present recommendations in a clear and concise manner. SalioGens Gene Coding, controlled manner to maintain the normal, regulated expression of genes such as cystic fibrosis transmembrane conductance regulator (CFTR). Percentage Acquired 10%. A) Salary.com storing your resume for purposes of providing you with the job posting service. The Foundations investment in SalioGen is part of our $500 million Path to a Cure initiative, an ambitious research agenda to deliver treatments for the underlying cause of the disease and a cure for every person with CF. Preference prior experience conducting investment due diligence on direct investments, co-investments, and investment funds. Click the checkbox next to the jobs that you are interested in. If you are a member of a news or media organization and need assistance, please contact the CF Foundations media team at mediarelations@cff.org. With the support of our Board of Trustees, Dr. Beall began working the phones to find a willing partner. More than 25 Virginia Tech-affiliated career fairs are held each academic year, listed by semester: fall and spring. If we are unable to reach you via email and you have not provided this information, we may not be able to fulfill your request. We want to hear from you. By agreeing to submit your resume, you consent (in accordance with our Terms of Use and Privacy Policy) to: Should you have any questions or wish have your information removed from our service, please contact us here. Cystic Fibrosis Foundation has made 53 investments. Get the latest nonprofit news, funding opportunities, job openings, and more delivered to your inbox with Philanthropy News Digest newsletters. Join to apply for the Investments Associate role at Cystic Fibrosis Foundation. KNOWLEDGE, SKILLS AND ABILITIES REQUIRED: Working toward a four-year college degree (Rising seniors strongly preferred) Ability to work collaboratively with team members to accomplish objectives Ability to prepare well-written, organized material and present recommendations in a clear and concise manner. We support one another. The Gene Coding machinery utilizes a proprietary mammalian enzyme that is designed to allow the integration of DNA sequences without causing double-strand DNA breaks and potential unwanted DNA damage. The Bethesda, Maryland-based foundation had more than $3.65 billion in investment assets as of December 31, 2014, according to regulatory filings. Funding calls from other funders of CF research Click the link in the email we sent to to verify your email address and activate your job alert. Cystic Fibrosis Foundation Jun 2019 - Mar 2022 2 years 10 months. 75% of employees would recommend working at Cystic Fibrosis Foundation to a friend and 80% have a positive outlook for the business. "This is a transformational moment for the foundation and the entire CF community," Beall said in a press release. `` We 're excited to work with the Cystic Fibrosis Foundation , the world 's leader in supporting breakthrough technologies for cystic fibrosis , '' said Geoffrey von Maltzahn , Ph.D , Co-Founder and CEO of Tessera Therapeutics , and General Partner at Flagship Pioneering . The endowment grew wildly in late 2014up from 2013's $611 millionwhen the organization's drug development affiliate sold royalty rights for $3.3 billion. We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease.